What is Daniella Maria Arturi Foundation (Dmaf)'s official website?

Daniella Maria Arturi Foundation (Dmaf)'s official website is https://www.diamondblackfananemia.org

What is Daniella Maria Arturi Foundation (Dmaf)'s NAICS code?

Daniella Maria Arturi Foundation (Dmaf)'s NAICS code is 541611

What is Daniella Maria Arturi Foundation (Dmaf)'s Industry?

Daniella Maria Arturi Foundation (Dmaf) is in the industry of Research

Who is Daniella Maria Arturi Foundation (Dmaf)'s Director?

Daniella Maria Arturi Foundation (Dmaf)'s Director is Lauren Carroll

Daniella Maria Arturi Foundation (Dmaf)

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Description

The Daniella Maria Arturi Foundation (DMAF) was founded by Marie and Manny Arturi in early 1996 shortly after the loss of their daughter, Daniella, who was afflicted with a rare bone marrow failure disorder called Diamond Blackfan Anemia (DBA). DBA is a red cell disorder that usually appears in the first year of life and leads to severe anemia, which may eventually be life-threatening. There currently is no cure for DBA other than stem cell (bone marrow) transplantation, and the treatments have limitations. Manny and Maries experience revealed the difficult reality and devastating consequences of very limited information and experienced doctors that many families face when caring for children with extraordinarily rare disorders. They became determined to try to prevent the lack of information and alternative treatment protocols from affecting any other child suffering with DBA. With this goal, Manny and Marie created the Foundation in order to improve the DBA clinical care environment, advance family and physician access to up to date DBA information, raise public awareness, and support and stimulate research initiatives that would work toward improved treatment options and a cure for DBA.
Headquarters: , Mattituck, New York, United States
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Website: https://www.diamondblackfananemia.org
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Legal Name:Daniella Maria Arturi Foundation (Dmaf)
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| NAICS Code: 541611 |
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Director for Daniella Maria Arturi Foundation (Dmaf)

Lauren Carroll

Director

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